The sadness left by grief never goes away. At any moment, I am able to look into my grief spots and feel the sadness and emptiness left there by significant losses. Losing the child of our dreams can certainly be one such loss.
There are many losses through life, and seen in a larger perspective, each loss adds meaning and depth to our lives. We all feel grief at various points in our lives but that does not minimize our times of happiness and joy. In fact, grief magnifies joy because happiness is so much sweeter after experiencing sadness.
One strategy is to do extra things that make us joyful so that the happiness in our lives balances or hopefully even outweighs the sorrow. It does not make the sorrow go away but it surrounds it with a cushion of good feelings and makes it easier to manage.
As we come to accept where our children are actually at and who they really are, we dream new dreams for them and for our families and these new dreams are much more likely to be based upon reality and therefore are more likely to be attainable.
When we once dreamed about having philosophical discussions with our child, we may now simply long to hear them call us mommy or daddy or say I love you…just once. Our dreams may involve easing up on hearing our child talk and focusing instead on just having her look into our eyes and smile. When such new goals are reached, it is joyful indeed. This is not to say that sometimes we don’t still wish or long for that once dreamed of discussion. When we focus there, we may always feel sadness that those discussions may never take place.
Dreaming new dreams and rejoicing in new goals helps us feel happier in this new moment with the child we actually have. Nobody wants any hardship to befall their children. We may feel disappointment, guilt, and sadness when our child has a challenge that will make life, which is already difficult, even more so. We get through the adversity and we love our children even as we grieve and we celebrate their unique lives and the time we are given to be together.
From Dr. Robert Naseef:
Grief may come and take you places you never expected to go. This is a normal and natural. It comes and goes. First of all realize that you are not alone when your heart aches. So go ahead and look at your grief. Observe your thoughts and feelings. Notice any sensations in your body. Accept them and be kind to yourself about having them. It doesn’t help to pretend to be positive when underneath you may be lonely, afraid, or sad. I have learned through my son’s 30 years that you don’t have to lie to yourself. You can grieve. You can complain. You can mourn. This helps you to go on, make the best of the situation, and enjoy life.
It is natural to wonder about what might have been especially around the holidays. Your longing for the child of your dreams or a typical life for you and your family may endure. You have to learn to live with that yearning, and you can do that, but you don’t have to lie to yourself about how hard this can be. As Kahlil Gibran reminds us, “joy and sorrow are inseparable . . . together they come and when one sits alone with you . . . remember that the other is asleep upon your bed.”
Secondly, try to accept yourself as you are—a kind and loving parent doing your best with your child who is undoubtedly doing his or her best under trying conditions. A perfectly lovely child with special needs can be very hard to be with because of their behavioral, social, or communication issues. When you love somebody, you love to be with them. When you don’t feel that and think you should, the guilt comes up, and your heart aches. As you can accept yourself in a kind and compassionate way, your heart heals, and then the grief lightens. Acceptance can bring change.
Finally, accepting our pain and ourselves leads to accepting and enjoying our child and our family. This is the gateway to love and happiness. That deep connection that a parent feels with a newborn, or a child’s first steps, or first words can be felt at any moment when we are truly aware and attuned to our child. That deep connection is alive inside you. As you rekindle it, you can actually experience very deep happiness. Let us hear from you about your experiences.